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World Community Grid Forums
Category: Completed Research
Forum: Nutritious Rice for the World
Thread: I'm dying of cancer @46, You think I care about rice? |
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Thread Status: Locked Total posts in this thread: 58
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loonym
Cruncher Joined: Mar 13, 2008 Post Count: 15 Status: Offline Project Badges: 
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I didn't join to crunch for folly or points. If I wanted that I'd stargaze. I crunch for XS, read into that what you will, but only because it's the best team on the planet. This is a repost from my March 13 introductory post there:
My Story Hey folks, I want to tell a story. I'm not sure why, but certainly not to garner pity, sympathy or attention. Maybe just to illustrate how much we all take for granted. I'm 46 years old and for 30 of those I was a hopeless, raging, low-bottom drunk, without regard for anything or anyone. It wasn't anything remotely resembling partying. If you didn't have time to belly-up to the table and drink and nothing but drink, then I didn't waste my time. Three years ago I met a wonderful German woman, living in nearby Canada, on the internet and after a short while I brought her to live with me as a friend, drinking buddy, partner. Two years ago we were married and not long after the wedding we learned she was carrying our child. My beautiful daughter Annabelle was born Dec. 12, 2006. It changed my life and my attitude, by the end of Feb last year I stopped drinking and began thoroughly enjoying my little girl and the freedom from every waking moment being dictated by a bottle. I began taking an interest in things that I had left behind, simple things like my hygiene, health, home upkeep, family, things normal people do Throughout the past 4 years I have occasionally noticed a small amount blood in my urine. I never gave it much thought and figured it was an unpleasant side effect of the heavy drinking. When it didn't go away after I quit the booze I eventually consulted a family doctor. He ran through all the tests one would expect and after a time referred me to a urologist. I met with him Feb 5 of this year and he checked me with what's called a cystoscope. Very cool tool, kinda like a dremel with a long flex head and very high tech attachments. He found a tumor, easily as large as a softball, inside my bladder. On March 5 I went in for an outpatient surgical procedure, a cystoscopy, where he tried to fully remove the growth and simultaneously cauterize the tissue. After he received the lab biopsies my wife, daughter, and I, all met with him in his office. I was told that the cancer I have is well advanced and extremely aggressive. He was choking back tears as he was recommending a full radical cystectomy, a procedure which removes the entire bladder, lymph nodes, prostate, and seminal vesicles, and he was very frank in saying that there is 75% chance he won't be able to save my life and to put my affairs in order. I didn't even know I had affairs As I said at the start, I'm not sure why I'm writing this but I will be running boinc and hopefully my daughter won't have to sit with her family 30 years from now and have a weeping doctor deliver this kind of news. A side note. The operation went poorly, my cancer is fully outside the bladder, attached to the bowel and pelvis, inoperable. I'm entering clinical trials next month at Dana Farber Cancer Institute. For research only, I'm incurable with stage 4 T4 bladder cancer. Want some rice???  |
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Richard Mitnick
Veteran Cruncher USA Joined: Feb 28, 2007 Post Count: 583 Status: Offline Project Badges: 
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I regret that no on has had ****(no pun intended) to reply to your post.
----------------------------------------I hope that your situation improves. You did not mention smoking in your bio. Did you smoke cigarettes, do you smoke cigarettes? >>RSM **Edited for inappropriate language** ---------------------------------------- [Edit 1 times, last edit by TKH at May 18, 2008 12:51:16 PM] |
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retsof
Former Community Advisor USA Joined: Jul 31, 2005 Post Count: 6824 Status: Offline Project Badges: 
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This is really something more for the Caring and Sharing area.
----------------------------------------https://secure.worldcommunitygrid.org/forums/wcg/listthreads?forum=241 edit: That was an adminstrative comment.
SUPPORT ADVISOR
----------------------------------------Work+GPU i7 8700 12threads School i7 4770 8threads Default+GPU Ryzen 7 3700X 16threads Ryzen 7 3800X 16 threads Ryzen 9 3900X 24threads Home i7 3540M 4threads50% [Edit 2 times, last edit by retsof at May 18, 2008 2:32:40 AM] |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
I thought WCG was about caring and sharing--I lost my wife one and a half years ago--She was 41-cancer- But i do care about Rice--it feeds millions of people
----------------------------------------[Edit 1 times, last edit by Former Member at May 18, 2008 12:06:09 AM] |
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Movieman
Veteran Cruncher Joined: Sep 9, 2006 Post Count: 1042 Status: Offline |
First of all I didn't know anything about this thread until I was sent a link from someone not on the XS team.
----------------------------------------loonym came to us last March as he said in his first post here. He wasn't a whiner, didn't come looking for sympathy and outside of his first post or when asked by another member hasn't brought up his medical situation at all. Just a guy, only a guy and no one special in any way except for the love of his daughter that you see in his posts at XS. He says much better than I ever could why we don't want our profiles changed by WCG but thats not why I'm posting. I read through the posts here and a couple things grabbed my attention. ***** One offers sympathy and hope that the person involved finds that miracle that will save their life. There is an old expression that my father said to me way back in the 1950's when he and I were walking down a street. I was maybe 6 or 7 and saw a kid my age walking down the opposite side of the street. The kid was limping and "carrying" one arm. He had polio and when I made fun of him my father looked at me and said this: "There but for the grace of God go I" Something I have never forgotten and something I beleive you need to learn. A little human compassion. The people that do the work for WCG aren't numbers or machines, they are warm blooded caring people and maybe that is the root of the problem between us. I consider these guys and the few ladies on our team not as teammates but as friends. When they hurt, I hurt. When they experience joy, I do also. People that we care about in this cold world we live in and maybe thats where we differ from most. Maybe that is why you saw so many from XS come and post on that other thread. They are friends and stand together for what they beleive in. The next time someone tells you they are dying and there isn't a lot of hope for them ***, tell them your heart goes out to them and you hope they can beat this disease. **Edited for intolerance**  [Edit 1 times, last edit by TKH at May 18, 2008 1:43:11 PM] |
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loonym
Cruncher Joined: Mar 13, 2008 Post Count: 15 Status: Offline Project Badges:
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This is really something more for the Caring and Sharing area. Thanks for your concern but I'm not looking to share. I wanted to get this on the record to help show that AUTO OPTING IN IS BAD no matter what team affiliations people have. I would crunch the disease research units even if there were no teams. I signed on to advance specific research. I did agree to run beta units when I signed up because I think it leads to better coding. I have neither the knowledge nor the time and energy to delete all the rice units from all my machines. I'm getting weekly chemo which wipes me out and I'm driving 50 miles round trip daily for radiation. Not to mention I'm a single dad raising my 18 month old daughter. I'm looking at 15 on the machine I'm typing on. They run 8 hours I believe? That's 120 hours of time that won't be used to run the units I signed up for and that's just 1 rig. I have 4 intel quads running from 3600 to 4000 mhz. Those cores can crunch a lot of faah, hcc, and hpf in 480 hours. https://secure.worldcommunitygrid.org/forums/wcg/listthreads?forum=241  |
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retsof
Former Community Advisor USA Joined: Jul 31, 2005 Post Count: 6824 Status: Offline Project Badges:
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Something I have never forgotten and something I beleive you need to learn. A little human compassion. ******loonym had a genuine concern, but piling on doesn't help. The admins made the decisions about opting-in. We're just out here taking the flak to prove that we don't have a deaf ear until something is redecided. It's on the agenda. **Edited for intolerance**
SUPPORT ADVISOR
----------------------------------------Work+GPU i7 8700 12threads School i7 4770 8threads Default+GPU Ryzen 7 3700X 16threads Ryzen 7 3800X 16 threads Ryzen 9 3900X 24threads Home i7 3540M 4threads50% [Edit 3 times, last edit by TKH at May 18, 2008 1:18:01 PM] |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
I thought WCG was about caring and sharing-- Really I don't know what WCG is anymore. ********  loonym I don't know you very well but think you are one of the good guys and hope in the end you can kick this disease. Can't do much other than give you a hand and a hug if you need it. **Edited for intolerance** [Edit 1 times, last edit by TKH at May 18, 2008 1:44:43 PM] |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Something I have never forgotten and something I beleive you need to learn. A little human compassion. ***** edited Thats as civil as I can be to you at the moment. Sorry to those I offended.  **Edited for intolerance** [Edit 2 times, last edit by TKH at May 18, 2008 1:18:46 PM] |
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retsof
Former Community Advisor USA Joined: Jul 31, 2005 Post Count: 6824 Status: Offline Project Badges:
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*** Language police being called in.
----------------------------------------**** **Edited for intolerance**
SUPPORT ADVISOR
----------------------------------------Work+GPU i7 8700 12threads School i7 4770 8threads Default+GPU Ryzen 7 3700X 16threads Ryzen 7 3800X 16 threads Ryzen 9 3900X 24threads Home i7 3540M 4threads50% [Edit 2 times, last edit by TKH at May 18, 2008 1:45:31 PM] |
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