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Former Member
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Re: Nerve regeneration and/or painkillers

That's not fair.
And that is where the records
- also a short agenda before a doctor's visit and a short summary after -
may come in handy as a help for you yourself
as well as for the professionals who get paid to assist you.

Basically medicine is a poison that needs careful monitoring
because it can harm you as RCC_Survivor wrote:
"Acetaminophen - 4 grams a day can cause permanent liver damage.
I see you are taking 1000 mg 3 times a day.
One can only hope that your doctor is monitoring liver functions closely".

[Nov 24, 2011 11:52:52 PM]   Link   Report threatening or abusive post: please login first  Go to top 
RCC_Survivor
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Re: Nerve regeneration and/or painkillers

My doctor doesn't monitor anything. No bloodworks no nothing. Basicly it's just refill after refill. That's about it. I have been asking everything i could think of. Found out pain clinic by google and asked about it and still nothing.

You need to find a new doctor!
This doctor (term used loosely) is not doing you any favors by providing access to refills without doing the lab work.
Something as common as Acetaminophen can be deadly.
Without the blood work you could unknowingly damage your liver beyond repair.
That is why some medications must be monitored.
Over the counter drugs are not safe either.
You need a doctor that cares about you and will work with you to find solutions.
Do you live in a small rural area where access to doctors is limited?
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Former Member
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Re: Nerve regeneration and/or painkillers

Yes i live in small town, but thingss were wors 3 years ago while i was living in a city. They did even less. Told me this is the practice with back issues like mine, just give refills and send back home. I know i would get better treathment from private practice, but i can't work and i need to pay all from my own pocket and i have kids and every bit of money i have goes for food,rent......

I know in Sweden they replace damaged spinal disks with somekind of foamy material and i could think that would be available here as well, but i comes to money again. At this time i have no funds and can't get any funding for it in near future. So i m between rock and hardplace.

I would like to thank everyone helping here and you all have very good ideas and i will start using them.

Still reading or writing about this makes me dizzy and i get really sick feeling with somekind of panic attack twists. So it might take some time me to answer questions.

Thank you
LTDAkiles
You can email me: akiles@windowslive.com
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nasher
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Re: Nerve regeneration and/or painkillers

its all about phraseing your questions.

you want to let the doctor explain why certain procures are better than others but you also want to make sure he/she knows that you have researched things on your own and have questions about specific things.... there have been a few alternative procures i have gotten because i asked about them... also if i know when i need lab work for certain things i can just ask the general practitioner to put lab work in and get the results and find out if we needed to rush any of my after care with other doctors.

once you have done the bulk of the work its just a few min a week of keeping track and maybe a bit of time now and then doing research as you have time.

when you talk to the doctors you have to be of the attitude that there advice is what you value but you have some questions about alternatives or that you have heard about yyy procedure and were wondering about there opinion about it.

if the doctors do not want to discuss things with you then you need to change doctors.
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mikey
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Re: Nerve regeneration and/or painkillers

Thank you Mikey159b.

Next time i go to my doctors i ask if i could go to pain clinic. Hopefully i could get at least working medication or a bit better working would be nice. Everything tried have made my pain wors or weaken my streght and will to continue. Have got very bad depression for two years after i had total burnout. Sleepingmeds didn't get me to sleep,depression meds got me more depressed and depression whent back to normal levels once i quit that medication and workingout didn't help at all once i stopped. Only thing i know helps is to walk or work out 24/7 without never stopping. I think is my bodys own painkillers at work and will eas the pain best.

I try to focus to my boinc team,crunching,blogging about boinc and talking about it so i can try to forget my pain. It's trying, not really working, but better to do something than be waiting something to happen.

I would love to find boinc project focusing on better pain medication or something nerve related.

Thank you
LTDAkiles


Just keep remembering how an infant learns to walk...they fall down a thousand times but keep trying and finally one day they get it, it will be the same thing for you! DO NOT get discouraged, progress WILL come, slowly, but if you videotape yourself today and then again in 6 months you WILL see improvement!!! Yes the biggest improvements come within the first two years or so, but they NEVER EVER stop coming!!!! There are always stories on the news of extraordinary medical breakthroughs and 'miracles' happenning! Those people just NEVER gave up, don't you do it either!!! The next person that comes into your room may be the one that has the answer to your problems, keep looking for them!!! EXPECT to walk again and to get your life back to normal, don't just wait for it EXPECT it to happen!! A positive outlook is key and giving up is the easy way out!! Do not accept mediocrity from your Doctors or yourself!!!
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Re: Nerve regeneration and/or painkillers

Whauww!
Brilliant morale boosting, mikey159b rose

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keithhenry
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Re: Nerve regeneration and/or painkillers

LTDAkiles, can you explain a bit more how health care is provided in Finland? It sounds like there are doctors in private practice and then there are other doctors in a public clinic type practice. To see a doctor in private practice, I presume that you either have to be able to afford them or have some sort of medical insurance that helps pay for them. The public clinic is provided by the government and paid for by the government. It costs you nothing or very little to see one of these doctors. This is the impression I have so far though it may well be wrong. Understanding how the "system" works is a big part of knowing the best way to use it to your benefit and getting the most out of it.

You mention two slipped disks. Disks don't really slip I think but this is a lay term for a damaged disk that doesn't provide enough cushion between the vertabrae above and below it allowing them to compress the nerves going out of the spinal cord to parts of the body. Did these disks move out of position or did they actually rupture and lose some of the gelatinous center?
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Re: Nerve regeneration and/or painkillers

Let me try to explain a bit about how it is in my country,
even as it is hard to explain how our Health system works,
and the Finnish one may even be different from the Danish.

Our health insurance is paid by taxes - 7% of our taxable income gives us "free" health care.
All health care used to be public.
The state ran all the hospitals; we could choose those; the nearest, mind you. Period.
Now we can choose any one countrywide that we think will be best - but how to compare?
We also have private ones as well now. It was a struggle no end for them to get a foothold.
In case the waiting list is long enough for public hospitals,
we can get a referral to a private one get treatment paid by the public system.
At all times we can go private if we pay out of our own pocket,
and the insurance industry offer a wide range of products covering private treatments.

General Practioners always ran private clinics, but it is in fact a make-believe.
99.9% of their services are covered by a contract with our National Health Care System.
Only special things such as vaccination against yellow fever, and such you pay directly out of your own pocket.

You can choose any GP within a certain distance from your home
- and further away if the GP agrees
- a question of driving time compensation listed in their contracts if home visits are needed.
The GP clinics decide for themselves how many patients they want to admit,
so finding the doctor you think will help you the best and be admitted into his/her clinic
can be a lenghty process. By and large, doctors are well educated and willing to do their best,
but it's my experience that you have to apply a commitment of your own and work with them.
They don't know everything - each patient is a new history altogether - and they are often overworked.

The Internet has provided the patient with information
- good and poor mixed in one big heap - hitherho unavailable,
and it's my experience that informing yourself is to your advantage.
However, it should never be presented to your doctor in a know-all-manner.
The purpose should always be to work together to reach the best possible results,
and most are interested in doing just that.
Involving oneself in ones health care is a relatively new thing for us Danes.
Doctors were gods, and you never questioned anything.
I felt quite blasphemic once I meekly protested the surprising intention of amputating my leg
- I was just 25 and admitted with a bad menisc after a dislocation .... my desire to save my leg made me "naughty".

When I lived in Rhode Island, I feared to fall ill, because I was helpless as to how I should go about it
coming from a cradle-to-grave welfare society even as I had an insurance bought in Denmark.

I have been to a public emergency clinic there with my mother when she arrived with swollen legs
after the transcontinental flight. They charged nothing. That was puzzling for me, too.
I think you Americans' "fear" of "socialized" medicine is comparable to my "fear" of "private" medicine.
We also had my ex taken to the hospital in the middle of the night -
having to wake up the volunteer ambulance crew was a little embarrassing -
and he was well taken care of in the hospital, and the bills we paid were refunded by our insurance.
All attempts to secure an American Health Insurance were in vain, tho.
For a long, long time the New York State Worker's Compensation paid for his chiropractor treatments
after a back injury at work - something we would have to pay most of ourselves in Denmark.

In the EU we have certain rights for getting treatment in other member countries, but - at least in my country -
the public system is not always on your side, and the rules are shrouded in cloudiness
to put it mildly - and plenty complicated as well
so you would have to study for weeks to find out what your rights might be.

Healt Care is complicated.

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[Edit 2 times, last edit by Former Member at Nov 26, 2011 2:42:16 PM]
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Re: Nerve regeneration and/or painkillers

Here we have to have insurances before you hurt yourselfe to get bills paid. If you are sick and try to get insurance you wouldn't get one or if they would give one , when time to send bills came they would denay to pay because of damage caused was happened earlier. Having health insurance here isn't common and products are mostly paying money from broken bones and because helath care is free why to take one. Same doctors are in public and private sectors. You can't choose your doctor, one is apointed to you and you must go to your own hospital(the nearest) always first. From there if your own doctor gives you promission and papers you can go specialist if doctor orders it. If you request new doctor soon you are without one and you have note saying difficult patient. Where would i be then? Then i would have to go private practice and most likely to see same doctors, but i would need to pay it from my own pocket. No insurance will ever pay my medical bills.
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keithhenry
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Re: Nerve regeneration and/or painkillers

Actually, health care there isn't that different from here. However, on to your situation which is far more important. It sounds like you have two herniated or damaged disks in your spine. The disks keep enough room between the vertebrae to allow the nerves inside to go out to various parts of the body. I haven't read anything that indicates you have paralysis or such nerve damage. With the damaged disks, the nerves there don't have the room they need and are compressed where they exit the spine and that is the cause of the intense pain in other parts of your body. I would say the first thing you want is to address the pain. That will allow you to recuperate physically and mentally so that you can move on to address the problem disks. Perhaps you could try something fairly simple - inversion. When you are standing, gravity is pulling your spine down increasing pressure on those nerves due to the damaged disks. The pain sounds a bit less laying down. Take that further to where gravity is working for you. Start by trying laying down on an incline with your feet higher that your head. There are tables that you strap your feet into, lay against and then turn upside down.
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