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Thread Status: Active Total posts in this thread: 45
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Sgt.Joe
Ace Cruncher USA Joined: Jul 4, 2006 Post Count: 7844 Status: Recently Active Project Badges:
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Spinal problems are terrible things to try and treat. For further research two reputable places to look would be Johns Hopkins and the Mayo Clinic. I hope you can find something which works for you.
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Sgt. Joe
*Minnesota Crunchers* |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Thank you Mikey159b.
Next time i go to my doctors i ask if i could go to pain clinic. Hopefully i could get at least working medication or a bit better working would be nice. Everything tried have made my pain wors or weaken my streght and will to continue. Have got very bad depression for two years after i had total burnout. Sleepingmeds didn't get me to sleep,depression meds got me more depressed and depression whent back to normal levels once i quit that medication and workingout didn't help at all once i stopped. Only thing i know helps is to walk or work out 24/7 without never stopping. I think is my bodys own painkillers at work and will eas the pain best. I try to focus to my boinc team,crunching,blogging about boinc and talking about it so i can try to forget my pain. It's trying, not really working, but better to do something than be waiting something to happen. I would love to find boinc project focusing on better pain medication or something nerve related. Thank you LTDAkiles |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
mikey159b, your input is heartwarming for its spirit - almost sisu like.
"Socialized medicine" is good and bad. We are in the Nordic countries not educated in taking matters into our own hands as far as health issues go as you Americans have always been. For us even asking for a hospital record could be compared to blasphemy, - well, not as much as it has been, but for generations, doctors have been some kind of gods on whose toes you don't want to step. I realize this attitude has to change, and that the first one to be interested in one's health is oneself. There is also the issue of when it rains it pours. A poor health leads to losing jobs and income .... I think little by little - with the help of all the good advice you give - there shall be a way to a better future with less pain. This is a new approach - English is not our mother tongue - and the attitude of our countries differ, but I think you and we have kindled something already. Thank you mikey159b - yours is the distinguished double Rosie as well ![]() |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Spinal problems are terrible things to try and treat. For further research two reputable places to look would be Johns Hopkins and the Mayo Clinic. I hope you can find something which works for you. Thank you, Sgt.Joe, from the cold Minnesota for your considerate input. Johns Hopkins and the Mayo Clinic sound like Atlantis ... I have met you previously, Sgt.Joe and appreciate your kindness thank you - the double Rosie is yours as well![]() - I'll mail my current Captain a copy and leave the thread to him, - because he's doing wonderfully handling matters himself |
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nasher
Veteran Cruncher USA Joined: Dec 2, 2005 Post Count: 1423 Status: Offline Project Badges:
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Doc's as gods.....
----------------------------------------yes it has been the same everywhere even in the US until recently. 8 years ago I started asking doctors questions about my wife's medical conditions cause i just did not understand what was going on. since then my wife has had multiple major surgeries do to her medical issues. and then 2 years ago I started to have major medical issues identified.... in the past 2 years i have learned a lot about talking to doctors and a lot of them are surprised when they realize I actually understand most of there medical terminology.... and I normally have the copies of the lab reports and have already compared my current labs vs what I have had historically. I have gotten used between visits looking up everything they have talked about and researching what they say I have and what else it could be. I have learned this about thyroid cancer 1) my Primary Care provider is not an expert on thyroid cancer he deals with general issues and sees 20-30 patients a day. 2) the ENT doctors are not specialists in thyroid cancer they deal with everything in the ears nose and throat. 3) The Endocrinologist is not a specialist on thyroid cancer he deals with the entire endocrine system but they are the closest doctor. 4) oncologists are not specialists on thyroid cancer they deal with every form of cancer and thyroid cancer is such a small group compared. 5) there is one of me I know what my normals is I know when there is some change I have the time to look everything up. I am the specialist on my body and I can learn about what is happening to it. having the Medical card/sheet like i put up a few posts ago is a starting point also realize doctors only have a few min to come up with a diagnosis or continuing care. so if you have a list of your complaints and such and all your questions you have come up with on a piece of paper (multiple copies) when I go to the doctors office I normally have the nurse or intern come in and take vitals and get an idea of what i am here for I hand them 1 copy of my questions and let them look at my medical card sheet. they then leave and brief the doctor. when he/she comes in they have the questions with them and I have a copy for me and my wife as well... we go over the questions one by one and give us answers. I normally have a list of what meds I need refills on as well as a list of what other services (referrals to other doctors or blood tests i need or whatever). Once I get home I start writing an update list for next visit starting with rephrasing the questions i did not get fully answered and looking up everything the doctor said to make sure i dont have more questions about the situation . the doctors appointment and time are precious... you only have a few min to do everything for you from greeting you to getting your medical history covered to getting to what your reason for visit is... if you have the list you save lots of time and make sure all your questions you had are answered. ![]() |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Again, I cannot but admire your systematic way of going about matters.
I feel sorry, tho, that are forced to spend a good deal of your time doing this, not only for yourself but for your wife as well. Some things tend to be universal; still, I would like to ask if you find that the health people find you doing your homework helpful or have a suspicious attitude toward you. I agree with your procedures and apply them in the principle myself, because it's my experience that if you have not done your homework and are well prepared, you'll find yourself on the sidewalk a few minutes later more bewildered than when you entered your doctor's office. I regard being an active patient necessary. I also find it important to try to convey to my doctor that I aim to contribute, not to obstruct or play Ms knows-all - and sometimes walking that thin line carefully is the key to successful communication, cooperation and better results for al involved. |
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RCC_Survivor
Veteran Cruncher USA Joined: Apr 28, 2007 Post Count: 1337 Status: Offline Project Badges:
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There are research projects out there like this one at Rutgers
----------------------------------------Regenerating Nerve Cells: Research Offers Hope in New Treatment for Spinal Cord Injuries http://www.sciencedaily.com/releases/2011/05/110503143520.htm also Rhode Island Hospital (little mermaid's adopted state) Offering Hope for Tissue Regeneration http://www.sciencedaily.com/releases/2010/02/100226101328.htm I think you will be surprised at the number of research facilities working in this area. Regarding doctors, don't pick a doctor that treats cases like yours five times a year, pick one that treats cases like yours five times a week. I found a specialist that met that criteria and 11 years later I am still here. I am afraid that the doctor with little experience would have removed both kidneys because it was an easy solution for him Instead I still have a portion of both kidneys and dialysis is not in my future. You can survive with 1/2 of one kidney, I have 1/2-3/4 of both kidneys. LTDAkiles, Acetaminophen - 4 grams a day can cause permanent liver damage. I see you are taking 1000 mg 3 times a day. One can only hope that your doctor is monitoring liver functions closely.
Be kinder than necessary, for everyone you meet is fighting some battle.
Please join the team The survivors ![]() Bilateral Renal, Melanoma, and Squamous Cell cancers |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Thank you for the links, rcc.
----------------------------------------I'll certainly try to approach the two places I almost forgot the double Rosie which you deserve for this and for reasons too many to mention![]() [Edit 1 times, last edit by Former Member at Nov 24, 2011 10:44:27 PM] |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
My doctor doesn't monitor anything. No bloodworks no nothing. Basicly it's just refill after refill. That's about it. I have been asking everything i could think of. Found out pain clinic by google and asked about it and still nothing.
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RCC_Survivor
Veteran Cruncher USA Joined: Apr 28, 2007 Post Count: 1337 Status: Offline Project Badges:
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Here is a good resource for finding researchers names and organization.
----------------------------------------http://scholar.google.com/scholar?hl=en&q...;as_ylo=2011&as_vis=1 The reports must be purchased but they are highly technical and are not what you want. Concentrate on the free summaries, they are a gold mine. http://scholar.google.com/scholar?hl=en&q...;as_ylo=2011&as_vis=1 Here is an example of what you can mine from the summaries: Skeletal Tissue Regeneration: Current Approaches, Challenges, and Novel Reconstructive Strategies for an Aging Population To cite this article: James Oliver Smith, Alexander Aarvold, Edward R. Tayton, Douglas G. Dunlop, and Richard O.C. Oreffo. Tissue Engineering Part B: Reviews. October 2011, 17(5): 307-320. doi:10.1089/ten.teb.2011.0143. Published in Volume: 17 Issue 5: September 21, 2011 Online Ahead of Print: June 30, 2011 Online Ahead of Editing: May 27, 2011 Full Text: • HTML • PDF for printing (645.1 KB) • PDF w/ links (431 KB) James Oliver Smith, B.M., B.Sc.,1,* *These two authors joint first authors. Alexander Aarvold, MBCh.B., B.Sc.,1,* Edward R. Tayton, MBBS, M.Sc.,1 Douglas G. Dunlop, MBBCh, M.D.,1 and Richard O.C. Oreffo, B.Sc., D.Phil.1,2 1 Bone and Joint Research Group, Centre for Human Development, Stem Cells and Regeneration, Human Development and Health, Institute of Developmental Sciences, Southampton, United Kingdom. 2 Stem Cell Unit, Department of Anatomy, College of Medicine, King Saud University, Riyadh, Saudi Arabia. Address correspondence to: Richard O.C. Oreffo, B.Sc., D.Phil. Bone and Joint Research Group Centre for Human Development, Stem Cells and Regeneration, Developmental Origins of Health and Disease Institute of Developmental Sciences University of Southampton Southampton SO16 6YD United Kingdom E-mail: roco@soton.ac.uk Received: March 10, 2011 Accepted: May 26, 2011 Loss of skeletal tissue as a consequence of trauma, injury, or disease is a significant cause of morbidity with often wide-ranging socioeconomic impacts. Current approaches to replace or restore significant quantities of lost bone come with substantial limitations and inherent disadvantages that may in themselves cause further disability. In addition, the spontaneous repair capacity of articular cartilage is limited; thus, investigation into new cartilage replacement and regeneration techniques are warranted. Along with the challenges of an increasingly aging demographic, changing clinical scenarios and rising functional expectations provide the imperative for new, more reliable skeletal regeneration strategies. The science of tissue engineering has expanded dramatically in recent years, notably in orthopedic applications, and it is clear that new approaches for de novo skeletal tissue formation offer exciting opportunities to improve the quality of life for many, particularly in the face of increasing patient expectations. However, significant scientific, financial, industrial, and regulatory challenges should be overcome before the successful development of an emergent tissue engineering strategy can be realized. We outline current practice for replacement of lost skeletal tissue and the innovative approaches in tissue regeneration that have so far been translated to clinical use, along with a discussion of the significant hurdles that are presented in the process of translating research strategies to the clinic.
Be kinder than necessary, for everyone you meet is fighting some battle.
Please join the team The survivors ![]() Bilateral Renal, Melanoma, and Squamous Cell cancers |
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