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Re: Idiopathic Pulmonary Fibrosis

Checked out the link and noted that in Table 2 there is a specific list of the Autoimmune organs affected.....note that IPF is not one listed as it would appear they do not have a clue as to the cause and treatment.........I don't think I will start eating my lungs as a possible treatment! wink
[Dec 12, 2013 8:14:29 AM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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Re: Idiopathic Pulmonary Fibrosis

I thought it might offer a lead to do some research. Anyway, you would probably go about it by first trying to find what surface protein the immune system tends to targets in cases of IPF. Even if it's truly idiopathic, its still probably a particular class of proteins.

Once you knew that, it might be enough to encourage tolerance to proteins that are structurally similar. I can't remember the details but I think at some point they have to be capable of being absorbed through the intestinal wall, but I could be wrong about that.

Also it may not even be the entire protein that's the problem. It could be just a subunit in which case maybe tolerance could be induced with short peptides - although at this point I might be completely full of sh**. I'm just speculating from very limited knowledge.

The point is that the more you dig, the more interesting and possibly useful coincidences you might find. I was just trying to give you something to work with. smile
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Re: Idiopathic Pulmonary Fibrosis

First of all one would have to persuade the scientific community it would be money well spent.....comparing us to other problems I would guess we are waaaaaay down the list! wink biggrin
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twilyth
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Re: Idiopathic Pulmonary Fibrosis

It looks like actress Rose McGowan also suffers from this disease and is trying to raise awareness .

I set a google alert for IPF. wink smile
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[Dec 12, 2013 9:46:05 PM]   Link   Report threatening or abusive post: please login first  Go to top 
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Re: Idiopathic Pulmonary Fibrosis

No it was her father .....who is now dead! Having watched the video it makes me wonder why I am still walking around after 12 years! biggrin
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twilyth
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Re: Idiopathic Pulmonary Fibrosis

Some more articles related to IPF

Support group helps lung disease patients

Intermune establishes the Pulmonary Fibrosis Foundation Care Center Network and Patient Registry
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[Dec 15, 2013 3:16:54 AM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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Re: Idiopathic Pulmonary Fibrosis

Pulmonary Fibrosis Foundation's Biennial PFF Summit

Concurrently a program took place for patients, family members, and caregivers to address their educational needs as well a discussion on how to live better with pulmonary fibrosis. All sessions will soon be available as webinars on the Foundation's website at www.pffsummit.org .

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twilyth
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Re: Idiopathic Pulmonary Fibrosis

Here's something that might be interesting. MS is also an autoimmune disease and I ran across this today. If I'm reading it correctly, it seems to say that while vitamin D doesn't act as an immunosuppressant, it seems to play an important role in how the immune system functions.
"Vitamin D doesn't seem to cause global immunosuppression," Gocke says. "What's interesting is that the T cells are primed, but they are being kept away from the places in the body where they can do the most damage."

Gocke says vitamin D may slow a process of making a sticky substance that allows the T cells to grab onto blood vessel walls, which allows the T cells to remain in circulation and keeps them from migrating to the brain.
So on a lark I did a google on Vit. d and IPF. I only looked at a couple of the hits but they looked like they might be interesting. That link is copied from my browser so you might have to edit it since it says you're using firefox and are in the US. Not sure how that works.
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Re: Idiopathic Pulmonary Fibrosis

Link works fine thanks biggrin
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Re: Idiopathic Pulmonary Fibrosis

Phase II clinical trial for new IPF drug FG-3019
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[Dec 21, 2013 9:43:09 AM]   Link   Report threatening or abusive post: please login first  Go to top 
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