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World Community Grid Forums
Category: Support
Forum: Suggestions / Feedback
Thread: haemochromatosis |
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Thread Status: Active Total posts in this thread: 3
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dustydave
Cruncher Joined: Mar 5, 2006 Post Count: 21 Status: Offline Project Badges: 
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I have found on the forums some postings back in 2006 suggesting hemochromatosis as a possible research candidate. I have a particular family interest in this, as my brother-in-law died in 2011 from complications related to this disorder.
----------------------------------------Although there is currently an established way of dealing with the symptoms, I am not aware there is actually a cure or even research into a possible cure that would remove the need for regular 3 monthly blood-letting procedures. This current way of treating the disorder seems very archaic. I understand that WCG is not about suggesting projects to the scientific community, but since this is a genetic disorder maybe there is a possibility of helping with relevant research at some point, hence this posting to have it on record here at WCG that might be picked up by scientists searching the internet for ways to help with computationally intensive analysis. Dave [Edit 1 times, last edit by dustydave at Aug 22, 2012 6:13:28 PM] |
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mikey
Veteran Cruncher Joined: May 10, 2009 Post Count: 826 Status: Offline Project Badges: 
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I have found on the forums some postings back in 2006 suggesting hemochromatosis as a possible research candidate. I have a particular family interest in this, as my brother-in-law died in 2011 from complications related to this disorder. Although there is currently an established way of dealing with the symptoms, I am not aware there is actually a cure or even research into a possible cure that would remove the need for regular 3 monthly blood-letting procedures. This current way of treating the disorder seems very archaic. I understand that WCG is not about suggesting projects to the scientific community, but since this is a genetic disorder maybe there is apossibility of helping with relevant research at some point, hence this posting to have it on record here at WCG that might be picked up by scientists searching the internet for ways to help with computationally intensive analysis. Dave The easiest way for this to happen is to find a researcher/research project interested in doing the research and have them contact WCG about hosting the project. I do not know how much tech support WCG gives but imagine it could be alot if they are so inclined. An Admin type should be able to point you to a contact for the specifics of HOW this happens.   [Edit 1 times, last edit by mikey159b at Aug 22, 2012 1:55:14 PM] |
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TKH
Former World Community Grid Admin USA Joined: Aug 13, 2005 Post Count: 775 Status: Offline Project Badges:
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Hello dustydave,
Any nonprofit organization that could benefit from the computational power of World Community Grid and meets the criteria outlined on our website may submit a proposal. Here are the basic requirements: https://secure.worldcommunitygrid.org/projects_showcase/viewSubmitAProposal.do This document describes the process: https://secure.worldcommunitygrid.org/bg/rfp.pdf This document is the application to be submitted: https://secure.worldcommunitygrid.org/bg/RFPApplication.doc If you know of an organization that is currently doing research on haemochromatosis, please feel free to forward them this information. Thanks. Tedi |
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