| Index | Recent Threads | Unanswered Threads | Who's Active | Guidelines | Search |
 |
World Community Grid Forums
Category: Completed Research
Forum: Help Cure Muscular Dystrophy - Phase 2 Forum
Thread: Someone well-known with muscular dystrophy |
| No member browsing this thread |
|
Thread Status: Active Total posts in this thread: 4
|
|
| Author |
|
|
robertmiles
Senior Cruncher US Joined: Apr 16, 2008 Post Count: 445 Status: Offline Project Badges: 
|
A link to an article on someone well-known announcing his muscular dystrophy:
http://www.thepostgame.com/commentary/201105/...s-fshd-muscular-dystrophy |
||
|
|
Jack007
Master Cruncher CANADA Joined: Feb 25, 2005 Post Count: 1604 Status: Offline Project Badges: 
|
Good article,
----------------------------------------I actually read the whole thing. Anything that can bring more attention/money to a disease is welcome!  |
||
|
|
Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Happen to see a news flash that Jerry Lewis, 85 now, is traveling the world to promote attention for the disease, in fact a quick google shows him to be chairman of the MDA: http://www.mda.org/ . He's retired now from the Telethon part.
--//-- |
||
|
|
Mysteron347
Senior Cruncher Australia Joined: Apr 28, 2007 Post Count: 179 Status: Offline Project Badges:
|
A link to an article on someone well-known announcing his muscular dystrophy Can't say I know him, but I did chase through some links - to his foundation and left a message about HCMD2. Don't suppose I'm the first, but a few WCG links aren't going to go astray... I decided to give a reference to Alessandra Carbone and that's where the fun-and-games began. The HCMD link led off to a page-not-found. The Contacts link led to the same page-not-found The IT contacts list from the mainpage showed an English-language contact, but emails were bounced (recipient rejected) I've just received a response "Thanks" from the head-of-department when I notified him of these problems. Only time will tell whether they actually get fixed... |
||
|
|
|