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World Community Grid Forums
Category: Completed Research
Forum: Help Cure Muscular Dystrophy - Phase 2 Forum
Thread: Interesting news about Muscular Dystrophy |
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Thread Status: Active Total posts in this thread: 21
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
17 July 2009 Science Daily 'Genetic Source Of Muscular Dystrophy Neutralized: Possible Cure?': http://www.sciencedaily.com/releases/2009/07/090716141127.htm
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Very interesting!
Thank you for your post. |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
AVI BioPharma and Action Duchenne Team Up to ...chenne Muscular Dystrophy
Action Duchenne provides $1.2m to support continuing development of drugs to treat Duchenne Muscular Dystrophy For Immediate Release CORVALLIS, OR., and. London, UK — July 28, 2009 — AVI BioPharma, Inc. (Nasdaq: AVII), a developer of RNA-based drugs, and Action Duchenne, a leading UK charity dedicated to increasing awareness, engendering action and raising funds to find a cure for Duchenne Muscular Dystrophy (DMD), today announced a collaboration to support the acceleration of research and development for AVI's exon skipping candidate drugs for the treatment of DMD. AVI has a new class of candidate drugs which are an important contribution to Action Duchenne's search for a treatment for DMD. We have teamed up with AVI to help accelerate these clinical programs as part of our commitment to cure this devastating disease," said Nick Catlin, CEO of Action Duchenne. "Our primary goal is to help provide treatment options for the many children and adults afflicted with DMD. We believe we can provide significant value to AVI's ground breaking efforts." "AVI and Action Duchenne share a common goal to advance new therapeutics and find treatment options for DMD patients," said Leslie Hudson, Ph.D., President and Chief Executive Officer of AVI BioPharma. "We believe this collaboration has high potential and we are also very pleased to receive the financial support from Action Duchenne which will help accelerate our research and development efforts for new exon skipping therapeutics...... |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Local restoration of dystrophin expression wi...n, proof-of-concept study
Mutations that disrupt the open reading frame and prevent full translation of DMD, the gene that encodes dystrophin, underlie the fatal X-linked disease Duchenne muscular dystrophy. Oligonucleotides targeted to splicing elements (splice switching oligonucleotides) in DMD pre-mRNA can lead to exon skipping, restoration of the open reading frame, and the production of functional dystrophin in vitro and in vivo, which could benefit patients with this disorder... |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
I posted this today in the Chat room here in JP´s Books Thread
Thought in posting same here, for some members that don´t usually visit that forum Jeni Stepanek Pays Tribute to Her Son in New Book “Messenger” Jeni Stepanek has gone through what no mother should: she lost her 14-year-old son, Mattie, after his lifelong struggle with a rare form of muscular dystrophy. Now she’s come out with a new book, Messenger: The Legacy of Mattie J.T. Stepanek and Heartsongs, to pay tribute to the boy who inspired the world with his poems of hope and strength. “Mattie’s body passed away five years ago, but I wrote this book because Mattie’s life is not about loss,” Jeni said on Good Morning America. “His life is a celebration of wit and wisdom and hope and peace, and his legacy’s getting bigger every year. And it was time to share the true story of his life.” Check out the video on GMA’s website.and continue reading her Excerpt.... |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
International effort to improve muscular dystrophy treatment
Neurologist Robert "Berch" Griggs, M.D., is heading the study of treatments for Duchenne muscular dystrophy, the most common form of the disease that affects children. The condition, which affects boys almost exclusively, progresses rapidly. Boys' symptoms start when they are toddlers; untreated, they end up in a wheelchair before they become teenagers. With today's best treatments, the disease, which affects about 28,000 boys and young men in the United States, is often fatal by the time a patient reaches his 20s or early 30s..... |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Human protein may help muscular dystrophy patients
Duchenne Muscular Dystrophy is the most common and severe childhood form of muscular dystrophy (MD), affecting one in 3,500 boys. The disease progressively weakens muscles cells and tissues until muscle degradation is so severe that the patient dies, most often in their late teens or twenties. Scientists at Brown University in Providence, Rhode Island and the University of Pennsylvania, hope their research into the human protein, biglycan, will ultimately improve the condition of muscular dystrophy sufferers. Their studies have shown that biglycan significantly slows muscle damage and improves function in mice with the Duchenne genetic mutation. Human clinical trials will be the next step. http://www.gizmag.com/human-protein-may-help-...ar-dystrophy-17411/17411/ |
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HamiltonServer
Cruncher Joined: Nov 10, 2005 Post Count: 1 Status: Offline Project Badges: 
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Good to know that maybe one of these days families won't have to watch their child slowly waste away and die like I did a year ago. Thats why I've switched all my processing time to this project!
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Here is a news article about a method that may stop the body from attacking the myelin sheathe around nerves: http://vitals.nbcnews.com/_news/2012/11/18/15...-autoimmune-diseases?lite
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