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Thread Status: Active Total posts in this thread: 518
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Yes I also wonder abt them ..
Hope to get a reply to my message ... |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Dear all,
I'm back again. Here are the videos of my last interview (sorry, in italian) http://www.youtube.com/watch?v=rCBNwfKOivU http://www.youtube.com/watch?v=NjmUhG0Qy4w http://www.youtube.com/watch?v=DKj7Earw_QQ http://www.youtube.com/watch?v=8Wtm62_MZP4 I'm with the Italian President of Parent Project Filippo Buccella. Daniele Amanti Found reached more than 350.000€ and in six months we'll be able to start the research project for rare mutation of distrophin gene. Daniele begins to show some problem while walking but... he always smile and joke and we smile and joke with him, always hoping and fighting. God bless you my friends |
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Dataman
Ace Cruncher Joined: Nov 16, 2004 Post Count: 4865 Status: Offline Project Badges:
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Good to hear from you fabama. Thanks for the videos and best wishes for the family and Daniele.
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Thanks for you mail !!
God bless !! |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
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Sport
Veteran Cruncher USofA Joined: Oct 23, 2006 Post Count: 1022 Status: Offline Project Badges:
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Fabama...how is my little buddy doing?
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Fabama...how is my little buddy doing? Hi Sport, hi everybody, Daniele is still quite well. During the last neurological examination (March 29) the physiotherapist has not yet found tendinous retractions but just a little 'stiffness in the Achilles tendon, so it was agreed to prescribing braces for the legs to carry the night, his magical shoes to sleep as my wife and I call them. About the research project I had meetings (between March 30 and April 6), very interesting and promising, with two Italian universities, a conference call with an Australian researcher and soon I'll be in Holland (April 19). Nothing definite yet but soon I think I can manage to start the research project. Still fighting and hoping. ![]() ![]() [Edit 2 times, last edit by Former Member at Apr 11, 2010 8:46:29 AM] |
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cswchan
Advanced Cruncher Canada Joined: Nov 24, 2005 Post Count: 144 Status: Offline Project Badges:
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Greets everyone...
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TLD
Veteran Cruncher USA Joined: Jul 22, 2005 Post Count: 856 Status: Offline Project Badges:
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Hi all I'm here and tent is sent up, where's Rick and the sheep at.
----------------------------------------Here the pie: http://stats.free-dc.org/stats.php?page=team&proj=bwcg&team=19063 ![]() [Edit 1 times, last edit by TLD at Apr 13, 2010 1:48:20 AM] |
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mike047
Senior Cruncher Joined: Aug 22, 2006 Post Count: 262 Status: Offline Project Badges:
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Hi all I'm here and tent is sent up, where's Rick and the sheep at. Here the pie: http://stats.free-dc.org/stats.php?page=team&proj=bwcg&team=19063 You bring coffee or do we wait for Rick? ![]()
mike
Crunch Hard, Crunch Often |
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