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Former Member
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Re: some news

Yes I also wonder abt them ..



Hope to get a reply to my message ...
[Dec 17, 2009 4:01:53 AM]   Link   Report threatening or abusive post: please login first  Go to top 
Former Member
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Re: some news

Dear all,
I'm back again.
Here are the videos of my last interview (sorry, in italian)

http://www.youtube.com/watch?v=rCBNwfKOivU
http://www.youtube.com/watch?v=NjmUhG0Qy4w
http://www.youtube.com/watch?v=DKj7Earw_QQ
http://www.youtube.com/watch?v=8Wtm62_MZP4

I'm with the Italian President of Parent Project Filippo Buccella.
Daniele Amanti Found reached more than 350.000€ and in six months we'll be able to start the research project for rare mutation of distrophin gene.

Daniele begins to show some problem while walking but... he always smile and joke and we smile and joke with him, always hoping and fighting.

God bless you my friends
[Jan 19, 2010 11:35:49 PM]   Link   Report threatening or abusive post: please login first  Go to top 
Dataman
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Re: some news

Good to hear from you fabama. Thanks for the videos and best wishes for the family and Daniele.
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[Jan 20, 2010 12:16:51 AM]   Link   Report threatening or abusive post: please login first  Go to top 
Former Member
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Re: some news

Thanks for you mail !!

God bless !!
[Jan 20, 2010 11:35:01 PM]   Link   Report threatening or abusive post: please login first  Go to top 
Former Member
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Re: some news

Dear Friends,
Parent Project Muscular Dystrophy need Your Help.
Vote for PPMD on Facebook


[Jan 21, 2010 6:53:10 AM]   Link   Report threatening or abusive post: please login first  Go to top 
Sport
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USofA
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Re: some news

Fabama...how is my little buddy doing?
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[Apr 10, 2010 2:31:12 AM]   Link   Report threatening or abusive post: please login first  Go to top 
Former Member
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Re: some news

Fabama...how is my little buddy doing?


Hi Sport,
hi everybody,

Daniele is still quite well.
During the last neurological examination (March 29) the physiotherapist has not yet found tendinous retractions but just a little 'stiffness in the Achilles tendon, so it was agreed to prescribing braces for the legs to carry the night, his magical shoes to sleep as my wife and I call them.
About the research project I had meetings (between March 30 and April 6), very interesting and promising, with two Italian universities, a conference call with an Australian researcher and soon I'll be in Holland (April 19).
Nothing definite yet but soon I think I can manage to start the research project.
Still fighting and hoping.





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[Edit 2 times, last edit by Former Member at Apr 11, 2010 8:46:29 AM]
[Apr 11, 2010 8:20:12 AM]   Link   Report threatening or abusive post: please login first  Go to top 
cswchan
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Canada
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Re: some news

Greets everyone...
[Apr 12, 2010 3:04:57 AM]   Link   Report threatening or abusive post: please login first  Go to top 
TLD
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USA
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Re: some news

Hi all I'm here and tent is sent up, where's Rick and the sheep at.

Here the pie: http://stats.free-dc.org/stats.php?page=team&proj=bwcg&team=19063
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[Edit 1 times, last edit by TLD at Apr 13, 2010 1:48:20 AM]
[Apr 13, 2010 1:23:31 AM]   Link   Report threatening or abusive post: please login first  Go to top 
mike047
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Re: some news

Hi all I'm here and tent is sent up, where's Rick and the sheep at.

Here the pie: http://stats.free-dc.org/stats.php?page=team&proj=bwcg&team=19063


You bring coffee or do we wait for Rick? biggrin
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mike
Crunch Hard, Crunch Often


[Apr 13, 2010 12:15:03 PM]   Link   Report threatening or abusive post: please login first  Go to top 
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