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Johnny Cool
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Re: Hallo

Greetings, fabama and Family! good luck


fabama, any news? good luck
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Sport
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Re: Italian Telethon


Fabama; my friend...how is my little buddy doing??
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Johnny Cool
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Re: Italian Telethon


Fabama; my friend...how is my little buddy doing??


What Sport posted! good luck
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Johnny Cool
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Re: Italian Telethon

fabama, any news? good luck good luck

Many of us want to know. peace
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Johnny Cool
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Re: Italian Telethon

fabama, any news? good luck good luck

Many of us want to know. peace


Anything now? good luck good luck
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some news

fabama, any news? good luck good luck

Many of us want to know. peace


Anything now? good luck good luck


Dear Johnny, dear all,
not good news from us.
A most accurate exam of Daniele RNA revealed an intronic intrusion of 158 nucleotites between exon 8 and exon 9. This kind of mutation is considered to be the real responsible of the lack of dystrophin protein in the muscle tissue.
Daniele seems to show the first sinthomps of the pathology such he can hardly climb stairs and he can't stand up very well.
He also seems non to speak well, languages problems are shown in 20% of duchenne's patients.
We're fighting hard.
Fabio
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Johnny Cool
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Re: some news

fabama, any news? good luck good luck

Many of us want to know. peace


Anything now? good luck good luck


Dear Johnny, dear all,
not good news from us.
A most accurate exam of Daniele RNA revealed an intronic intrusion of 158 nucleotites between exon 8 and exon 9. This kind of mutation is considered to be the real responsible of the lack of dystrophin protein in the muscle tissue.
Daniele seems to show the first sinthomps of the pathology such he can hardly climb stairs and he can't stand up very well.
He also seems non to speak well, languages problems are shown in 20% of duchenne's patients.
We're fighting hard.
Fabio


Fabama, I have read your post several times since yesterday and I almost did not know what to say ...

We're fighting hard.

Indeed, Fabama, indeed. The fight is not over. rose rose rose
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Re: some news

Dear Johnny an dear all.
We had to wait for so long and now HCMD2 has finally started.
CRUNCH, CRUNCH, CRUNCH

Nothing to say but CRUNCH

hugs

Fabio
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Re: some news

Yep, great news Fabio dancing
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Re: some news

Télébump
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