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twilyth
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Blogspot

Share your experiences, opinions and even feelings here. Please contribute if you want to share, vent or ramble. Please feel free to respond to anything that strikes a chord with you.

I had a rough night - no not THAT kind. I had the mother of all panic attacks. After pumping myself up with Compazine, Klonipin, beta-blockers and codeine, it still showed no sign of abating. I fell asleep and forgot to take my lithium earlier in the evening, but it's hard to believe that was the problem. This has been happening since I started taking Namenda. But I stopped taking it over a month ago and I'm still getting these symptoms.

I had encephalitis when I was 6 years old - viral - probably equine. This one has a high mortality rate. When I didn't die in the hospital, they sent me home. Didn't die there either, but must have had significant brain damage. I'll skip that bit for now. Anyway, that was the reason for taking Namenda.

I know some psychotropics can cause organic changes that persist after the drug has been expelled so I'm guessing that this is the link with my attacks.

All I know is that this was one of the worst I've ever had and I've had some that were gold medal, world class, freak outs.

Calling the shrinkologist today a telling him to give me script for IV ativan and a gross of syringes. Not going through this again - Nuh-uh, Nope, not again.
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[Edit 2 times, last edit by twilyth at May 29, 2007 3:41:50 PM]
[May 18, 2007 12:13:28 PM]   Link   Report threatening or abusive post: please login first  Go to top 
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Re: Blogspot

Hi twilyth
Hang in there. Long ago I lost the right to take anything stronger than aspirin, or the occasional Excedrin. Everything else just stopped working. I just keep my expectations low about the day at hand, and when I succeed in doing that, I have a good day... cool rose good luck
[May 18, 2007 1:05:50 PM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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Re: Blogspot

Hi twilyth
Hang in there. Long ago I lost the right to take anything stronger than aspirin, or the occasional Excedrin. Everything else just stopped working. I just keep my expectations low about the day at hand, and when I succeed in doing that, I have a good day... cool rose good luck

I'm not sure what you mean, but feel free to elaborate - either here or you can send me an email (see icon at bottom). Also have ICQ and AIM but not always at that computer.

Got in touch with the shrink and I'm supposed to try Xanax. Been there, done that, got the promotional items from the manufacturer. We'll see what happens. Why don't they make something like an epi-pen for thorazine?

I don't really mind being sick as long as I have some idea of what to expect. Instead, every day is like spinning some satanic roulette wheel. Occasionally Satan throws you a bone, but it's just to give you some false hope for the next time you get bent over.

I don't actually belief in satan, but the concept makes a good scapegoat.
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[May 18, 2007 10:34:10 PM]   Link   Report threatening or abusive post: please login first  Go to top 
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Re: Blogspot

I've only had two serious panic attacks in my life, plus several minor ones. Nothing ever lasted longer than 20 minutes or so. I cannot imagine going through all of that.

No matter that it felt like I might die, somewhere in the back of my mind, I knew, I just knew I really wasn't going to.

I know this sounds stupid, but I was mostly afraid of being afraid. Afraid that I couldn't control my fear, afraid that others would see my fear, afraid that I would embarrass myself, the list just goes on and on.

Take some consolation in the fact that attacks lessen in frequency and severity as we age. I haven't had panic attack in over 20 years now.

And I pray that I never have another one.
[May 19, 2007 6:35:11 AM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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Re: Blogspot

debs - thank you for sharing your experience.

Panic attacks are different for everyone. I know the kind you're talking about. They sound similar to most of my experiences. This time, and the last dozen or so times over the past month were in a different league. Usually, especially with decades of practice, you can learn to talk yourself down. Tell yourself it will pass, that you've been through it before, that it's not that bad, and so on. I guess the recent phenomenon would be more appropriately called terror attacks. The rational mind can't even get a word in edgewise. It's all raw emotion. It's almost a dissociative experience where you feel more like an observer than a participant - except for the sh!tting your pants part. Ok, that hasn't happened yet, but . . .

I think that there is a psychological as well as biochemical component for normal panic attacks and that's why psych coping strategies help. But this feels almost completely biochemical - like any ability your brain has to attenuate or mitigate the raw emotional component is just gone, out to lunch, asta la vista baby.

For example, the other night, I was so doped up on tranquilizers and sedatives, I couldn't even stay conscious anymore. I fell asleep while still having the attack. Compazine and Klonopin are some serious downers and even these barely made a dent. Thank god they put me out so I could ride the rest of it out while unconscious. But the next morning, there was still some residual discomfort - even after being in a drug induced "coma" for several hours.

Thank you for understanding though. It helps to hear that other people have been through the same thing. I don't worry about what people think anymore. After a while you start to feel like a soldier who's seen a lot of combat - you just don't sweat the small sh!t.
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[Edit 1 times, last edit by twilyth at May 19, 2007 10:28:10 AM]
[May 19, 2007 10:15:19 AM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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Re: Blogspot

By the way, this thread isn't just a place for me to whine and lament my lot in life. It should be a place for everyone to share thoughts and experiences, both good and bad, that are important to them. It's also not a p!ssing contest - my experience is better/worse than yours so nah-nah-neh-nah.

Please use this thread to share whatever you think is shareable.
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[May 19, 2007 10:33:04 AM]   Link   Report threatening or abusive post: please login first  Go to top 
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Hey
Sorry I didn't elaborate. I have suffered with cluster headaches, a form of migraines, associated with panic attacks for over twenty years. And they do, slowly, become less intense and less regular!
I heard something neat yesterday. Fear is putting my situation between me and the solution. Faith is putting the situation behind me, and walking smack into the solution.
Right on twilyth. This is a kool thread. There is not always someone to bounce things off. So, writing here is kind of soothing for me... rose good luck
[May 21, 2007 2:49:34 PM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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Excellent! It does help to just do an emotional core dump from time to time. But it's even better when you get some feedback and maybe even some support.

I mentioned I had encephalitis when I was a kid. I don't know if that is the cause of all my problems, but one thing I used to have to deal with were migraines. I would pop ibuprofen and ketoprofen like M&M's and it would barely help. Thank god I never got the kind with aura's. I did have light sensitivity and occasionally nausea. My mom used to get migraines that would keep her in bed for a couple days.

I'm not sure why they stopped. Being on disability and not having to deal with workplace stress probably helps, but there's plenty of other stressors to keep me occupied so I'm not sure that's it.

I assume you've tried drugs like sumatriptan. Over-the-counter L-tryptophan might also help. It was off the market for about 15 years but you can now purchase it again - although you'll have to do a little searching. Vitamin Shoppe carries one brand. There's also 5-HTP - which is available virtually everywhere - but I stay away from that stuff.
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[May 21, 2007 3:26:08 PM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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A couple days ago I took my fiancé to a fancy restaurant for her birthday. She's really helped me out a lot the past few weeks. One of my problems is GERDS. I know that alcohol aggravates the problem, but I figured, what the frak, it's only one drink. I got a blue Hawaiian - vodka, blue Curacao, etc. I nursed it for the hour and a half we were there, but by the time I got back home, the cells of my stomach lining were beginning to revolt. I was in agony for the rest of the night and into the morning. I think the stomach problems have somehow been triggering the panic/terror attacks. I'm deathly afraid of being nauseous. I have no problem with other common phobias - needles, spiders, snakes, etc., but puking and flying get me very stressed out. However I've had to deal with both before so I'm still convinced that there's got to be more to this. I'm not normally such a wussy. Generally I can take a pretty fatalistic attitude and think 'well, I've done everything I can, whatever happens now is beyond my control so I may as well chill'. But that hasn't been the way things have been going lately. I still think it's a residual affect of one of the meds I stopped taking even though my shrink thinks I'm stoned. But the fact that massive doses of tranqs and sedatives don't do anything to help - except put me out - has got to mean something. It's definitely more than just emotional.

Anyway, I found that Zofran helps with nausea, cramps and the emotional sequelae. Unfortunately 10 4mg tablets is about $200 - can you believe that - it's really obscene. I did manage to find a good pharmacy in Canada though. They sell 10 ***8*** mg tablets for $70. God, you've got to love socialized medicine.

I found this place on an excellent web site - see www.drugbuyers.com - they give info and user reviews for all sorts of mail order pharmacies both foreign and domestic. It's a great resource. You have to register to use some of the features, but you don't have to sign up for the VIP membership - that's way to expensive - unless you spend a large chunk of your income on meds.
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[May 23, 2007 12:05:46 PM]   Link   Report threatening or abusive post: please login first  Go to top 
twilyth
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Well, things have been ok the past couple days. Saw my shrink and got my fist full of scripts. I feel sorry for my poor pharmacist.

Will report back on how ordering drugs from Canada goes. Just for yucks I asked my pharmacist what the Zofran script would cost. It was about 6 times what I'm actually paying. I don't understand why there isn't a revolt in the US over the prices the drug companies charge. Talk about a bunch of greedy SOB's - actually that's too polite for what I really think.

Speaking of greedy b@st@rd$, did anyone see 60 minutes on Sunday? There's this guy from MIT who is trying to get $100 laptops to children in impoverished countries. I know it sounds daft, but you have to see the segment. Apparently it gets the kids excited about learning and education is the fastest way out of poverty. Anyway, now Intel is trying to get into the act by building their own laptop for this purpose. Well, competition - great you say. Except that Intel is selling these machines below cost so that they can have a presence in a 1 billion soul potential market. And guess who makes the chips for the MIT computer - yup - AMD. Intel just can't handle a little healthy competition. They're so used to being the only game in town they can't take it.

I think Intel is going down the same road as IBM. Big Blue had such a virtual monopoly for so long that they didn't even recognize the competition. Finally they had to change their business model to become primarily a service company. Intlel is at least making an effort to keep up with AMD, but their predatory business practices are reason enough to make your next pc and AMD - no Intel inside.
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