Information

[gonecamping]

My MIL went into the hospital new years eve and has been transported to the University Hospital in KY for testing to see what is wrong with her. She has been on a steady decline the last 5 months. We have been trying to get the doctors to test her for ALS (Lou Gehrigs disease) because she has been showing all the symptoms. She went into the hospital because she can no longer swallow. THe hospital didn't like what they saw apparently because they transferred her. Today they insert a feeding tube so she can get some liquids and some nourishment. We are on the opposite side of the country from her so we are relying on my crazy (literally) SIL for information. At this point we are thankful she is in a place where they are finally taking care of her. She has been at home, no one really helping her and she has a bedsore and her heels are raw from sitting on the wheelchair footrest. We are just praying that we can finally get some answers as to what is wrong with her and that her quality of life can improve.

When we were there at the end of August we were horrified and try to get things in place. But its hard to do being so far away. DH is really struggling with this and will probably fly back next week so he can be there with his Mom. We are hoping it is something other than ALS. One doctor mentioned Stiff Person Syndrome which is super rare. I told my husband she is in the best place she can be right now. She is in the nuerology wing and they will find out what is wrong. Please pray that they do! Thank you!

[love2stamp]

Prayers being sent.

[1grandma]

Praying for her and for your family. May I make a suggestion? Call the hospital, ask for Social Services. Speak to her case manager to explain the situation and your needs. The SS worker can arrange for keeping you informed (instead of coming from the crazies). And they should be helpful with arranging for her continuation of care after she leaves the hospital.

[gonecamping]

Praying for her and for your family. May I make a suggestion? Call the hospital, ask for Social Services. Speak to her case manager to explain the situation and your needs. The SS worker can arrange for keeping you informed (instead of coming from the crazies). And they should be helpful with arranging for her continuation of care after she leaves the hospital.

Thank you! We never even thought of that. I will make that call today!

[sherelm]

Of course we'll pray for her. And for your husband and you.

Bibi, I was going to say something similar - if I were your husband, I'd be asking my mom to sign "power of attorney for healthcare" over to me right now so HIPPA won't stop them from giving out information to you. I'm sure your husband can convey to his mom that he will do only what she wishes, but that he needs to be kept abreast of it.

Do NOT go looking up things/symptoms on WebMD or anything - you'll scare the crap out of yourself! Just take it one step at a time. How old is she? That's another consideration - maybe she's too old/ not old enough for some of the nightmares you are worrying yourself crazy over.

[scrapbookmary]

Praying for her and for your family. May I make a suggestion? Call the hospital, ask for Social Services. Speak to her case manager to explain the situation and your needs. The SS worker can arrange for keeping you informed (instead of coming from the crazies). And they should be helpful with arranging for her continuation of care after she leaves the hospital.

Exactly what I was thinking. I am so sorry life is so difficult right now. Prayers going your way.

[debamas]

Certainly, prayers being offered. Good advice given above from Bibi and Sher. Hope whatever it is, she'll be given the greatest care now and after release.

[oceanbreezes423]

Prayers lifted! You remember to take time for you, and hugs to you all!!

[scrappininAK]

prayers for her and you and your family - being so far away can make you feel helpless.

[SherrieLynne]

Saying a prayer for her and your family.

[mgehrke]

Prayers and (((HUGS))) being sent.

[blbabe1234]

Hope those doctors can figure out what is wrong with your MIL. Will be thinking of her.

[suewho372]

Will keep her and you & family in my prayers!

[Charleneanne]

praying for the best possible outcome for your MIL. And hugs to you and your DH my dear.

[Retiree3]

I will keep all of you in my prayers.

[pawprints]

So sorry to hear this. I hope the drs can figure it out and it is not as bad as it seems. ((Hugs))

[anazelia]

I am so sorry for all you all are going through. sending P&pts your way.

[ernstem]

So sorry to hear this...thoughts being sent.

[Wheeliegirl]

Sorry to hear this. Hope the doctors can figure out what is wrong with your MIL soon!

[gonecamping]

Thanks everyone. We still haven't heard much, they did get the feeding tube inserted and she is resting comfortably. I have been unable to get through to social services at the hospital. Will keep trying to do that. I appreciate everyones supportive words and thoughts.