Index  | Recent Threads  | Unanswered Threads  | Who's Active  | Guidelines  | Search
 

Quick Go »
No member browsing this thread
Thread Status: Active
Total posts in this thread: 9
[ Jump to Last Post ]
Post new Thread
Author
Previous Thread This topic has been viewed 3863 times and has 8 replies Next Thread
Former Member
Cruncher
Joined: May 22, 2018
Post Count: 0
Status: Offline
Reply to this Post  Reply with Quote 
Profit from our work

How can we, donators, know that the work we give won't be used to profit?

Where is the link to the reseachers website? Where are their names?

How many papers have been published since the beginning of WCG?
[Oct 22, 2009 12:49:50 PM]   Link   Report threatening or abusive post: please login first  Go to top 
Sekerob
Ace Cruncher
Joined: Jul 24, 2005
Post Count: 20043
Status: Offline
Reply to this Post  Reply with Quote 
Re: Profit from our work

Hi Pedro,

The new Research and search function design launched last week was designed to answer those questions, so wonder what went wrong. On the researchers, go to front page, hover over the Research button, select a science. Then in left margin there's the old link to the project scientists page.

Profit... well the data is required to go public and profit is not a dirty word. Someone in the end has to do the clinical testing, manufacturing, obtaining FDA approval etc and the pharmacist where you can get it in the end has to live too. The 'public domain' one step to drive the price down, but mostly to get research done that otherwise would never or with many years delay be completed. That latter is our greatest mission I think, with otherwise wasted CPU cycles.
----------------------------------------
WCG Global & Research > Make Proposal Help: Start Here!
Please help to make the Forums an enjoyable experience for All!
----------------------------------------
[Edit 2 times, last edit by Sekerob at Oct 22, 2009 1:02:45 PM]
[Oct 22, 2009 12:56:58 PM]   Link   Report threatening or abusive post: please login first  Go to top 
Sekerob
Ace Cruncher
Joined: Jul 24, 2005
Post Count: 20043
Status: Offline
Reply to this Post  Reply with Quote 
Re: Profit from our work

PS, I was expecting for the Button bar above the Forum to get the same functionality as it has on the front page and on the Statistics/My Grid page. Don't know if that is planned.
----------------------------------------
WCG Global & Research > Make Proposal Help: Start Here!
Please help to make the Forums an enjoyable experience for All!
[Oct 22, 2009 1:06:12 PM]   Link   Report threatening or abusive post: please login first  Go to top 
Former Member
Cruncher
Joined: May 22, 2018
Post Count: 0
Status: Offline
Reply to this Post  Reply with Quote 
Re: Profit from our work

To be honest I think this post is offensive. I've often read the forums but this is the first time I've been compelled to post. I think that questioning the integrity of what we are all doing here is wrong.
[Oct 30, 2009 2:21:58 AM]   Link   Report threatening or abusive post: please login first  Go to top 
JmBoullier
Former Community Advisor
Normandy - France
Joined: Jan 26, 2007
Post Count: 3715
Status: Offline
Project Badges:
Reply to this Post  Reply with Quote 
Re: Profit from our work

Hi John and Wendy, and welcome to WCG forums!
Actually this is a question regularly asked here, more or less directly, either by doubtful potential new participants who want to know, or by older members who are asked by friends to whom they are trying to "sell" the idea.

It goes from "is it for profit?" or "I don't want to give free work to big pharmas" from people who have not read at all about WCG and its projects, to "how can I be sure that the results of our work will be public domain?" from people who have read but wonder how it is enforced.

Personally I think that it is better to ask than to stay with a wrong opinion and go away.

Between the two extremes above there are the "yes, but some companies will be able to use these public results to make products (drugs, usually) that they will sell and make profit with". One common answer is "yes, fortunately, because there are lots of other steps to go through between fundamental findings and a safe and efficient drug that can be distributed to the public, and the labs who work with WCG and us would hardly be able to handle all these subsequent steps". Also one must remember that for some of our projects like HCMD2 the market is so smaller that most big pharmas would never start the work if they had to do it from scratch. It's not for nothing that these diseases are called orphan diseases.

You may search the Chat Room forum for such threads or have a look at specific project forums in the Active Research section for threads where the scientists explain what needs to be done after we hopefully provide promising results.

Thank you for your interest, your contribution and for trusting WCG. Jean.
----------------------------------------
Team--> Decrypthon -->Statistics/Join -->Thread
[Oct 30, 2009 5:31:04 AM]   Link   Report threatening or abusive post: please login first  Go to top 
Former Member
Cruncher
Joined: May 22, 2018
Post Count: 0
Status: Offline
Reply to this Post  Reply with Quote 
Re: Profit from our work

I will add a few links:
https://secure.worldcommunitygrid.org/research/research.do?filterCategory=2_0 is a good start for following updates to project news.
http://www.worldcommunitygrid.org/research/viewSubmitAProposal.do has links to download PDF files showing a sample contract that each project signs requiring it to donate our results to the public domain.

Lawrence
----------------------------------------
[Edit 1 times, last edit by knreed at Oct 30, 2009 2:52:39 PM]
[Oct 30, 2009 1:54:29 PM]   Link   Report threatening or abusive post: please login first  Go to top 
Movieman
Veteran Cruncher
Joined: Sep 9, 2006
Post Count: 1042
Status: Offline
Reply to this Post  Reply with Quote 
Re: Profit from our work

To be honest I think this post is offensive. I've often read the forums but this is the first time I've been compelled to post. I think that questioning the integrity of what we are all doing here is wrong.

Nah, it's an honest question.
My feeling is that in say 5-10 years there will be drugs and/or treatments to cure disease from the foundation of data that we are accumulating now.
So when the unfortunate day comes those years from now that one of us or our children are diagnosed with some nasty disease the next words from the Dr. will be "But there is treatment to cure this"
THAT is how we all profit. wink
Personally, I look at this work as something to do for my kids and yours.
I honestly can't think of anything that i could possibly do for them that can be worth more to them.
----------------------------------------

[Oct 31, 2009 4:55:31 AM]   Link   Report threatening or abusive post: please login first  Go to top 
mikaok
Senior Cruncher
Finland
Joined: Aug 8, 2006
Post Count: 489
Status: Offline
Project Badges:
Reply to this Post  Reply with Quote 
Re: Profit from our work


Profit... well the data is required to go public and profit is not a dirty word. Someone in the end has to do the clinical testing, manufacturing, obtaining FDA approval etc and the pharmacist where you can get it in the end has to live too.


That's right. There is a difference between science and commercialization. When science reaches the point where the new drug can be created, the commercialization starts. There will be expences, so the drug can newer be free. But without without scientist, companies would newer lounch new products. So everyone has their own tasks in this process, where in the end, you have a drug for the disease. And I think that's much better than not to have that cure.
----------------------------------------
to infinity and beyond

[Oct 31, 2009 8:12:00 AM]   Link   Report threatening or abusive post: please login first  Go to top 
sk..
Master Cruncher
http://s17.rimg.info/ccb5d62bd3e856cc0d1df9b0ee2f7f6a.gif
Joined: Mar 22, 2007
Post Count: 2324
Status: Offline
Project Badges:
Reply to this Post  Reply with Quote 
Re: Profit from our work

I think it is essential that people understand that scientific results are shared within the scientific community and the results are published for all to see, in scientific papers, reviews and even online.

What the drug companies do with the results is a different and separate matter. Yes they are profiteering off the back of scientific research, other peoples work. Yes, not enough money actually goes back into research. Yes they have become far too powerful, capable of interfering with politics and economies, but they do make drugs and some of them even work.

You should also realise that results often tell us something that just changes our understanding and behaviour towards disease. Research does not necessarily lead to the manufacture of a drug. It can lead directly to a disease management system that extends and improves peoples lives.
Sometimes even to find the source of a disease.
For example, the tsetse fly does not in itself give you sleeping sickness, it is the parasite it carries that does the damage. Without the parasite there would just be a bite, no disease. We know this because of scientific research.
When it was worked out that mad cows disease was caused by a prion the governments could take action to prevent its spread.

So not all scientific research is drug orientated.
Recent scientific research has shown cancer to spread faster during times when patients have infections or secondary illnesses. This is due to the immune systems behaviour, and cancer taking advantage of it.
Although this may lead to a drug, some day, for now it allows for a better understanding of many cancers behaviour. This enables doctors to more accurately perform risk assessment and design better management systems for patients. Perhaps it helps explain why chemotherapy sometimes works.
[Oct 31, 2009 11:11:44 AM]   Link   Report threatening or abusive post: please login first  Go to top 
[ Jump to Last Post ]
Post new Thread