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Category: Community Forum: Caring and Sharing Thread: Maggie's Story |
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Thread Status: Active Total posts in this thread: 9
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USAFA 82
Veteran Cruncher Colorado Springs, Colorado Joined: Jan 20, 2005 Post Count: 1001 Status: Offline Project Badges: |
Please pray for a little girl named Maggie. She was diagnosed with a brain tumor five years ago. The Doctors removed most of it but the bits that are left are causing several seizures a day. She is currently at St Louis Children's Hospital with her mom and dad undergoing tests. You can read about her daily journey at her dad's website: http://www.robbushway.com. She's been uplifted by reading the encouraging messages from people around the world so leave her a note if you have some time. Thanks!
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Diana G.
Master Cruncher Joined: Apr 6, 2005 Post Count: 3003 Status: Offline Project Badges: |
I am praying, Mike. I will also check out the website...
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
The hidden truth of the dangers from kids using digital cellular phones(especially cdma), bluetooth, wireless computers(wifi) and uwave based GHZ wireless phones.
I wonder how long it will take to prove the link and how many will get sick and or die before that happens? |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Prayers coming your way Maggie.
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robertmiles
Senior Cruncher US Joined: Apr 16, 2008 Post Count: 443 Status: Offline Project Badges: |
If you would like to join more BOINC projects for fighting cancer, even if they aren't at WCG, see here:
http://boinc.bakerlab.org/rosetta/ http://cels-at-home-dev.dyndns.org/cels/ |
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USAFA 82
Veteran Cruncher Colorado Springs, Colorado Joined: Jan 20, 2005 Post Count: 1001 Status: Offline Project Badges: |
Maggie had a vagal nerve stimulator (VNS) implanted this week and she and her parents are now home again, arriving yesterday.
----------------------------------------This pretty much summarizes their major concern: While we wait to see how effective the VNS and new seizure med will be, the doctors have begun preparing us for the real possibility of a hemispherotomy - disconnecting the right hemisphere of Maggie's brain. We don't know if that will be weeks, months, or years away, but it is becoming more and more clear that this is likely where things will end up, as we have exhausted all other options known to us and Maggie's doctors. Much of this depends on how the new drug works, how helpful the VNS is, if we can keep Maggie out of the hospital, and if they can get more solid info from the inter ictal SPECT test for a possible resection. The doctors are not hopeful about a possible resection, though. There is a lot more risk of something going wrong during the resection, which would cause much more damage and no benefit, than a hemispherotomy would. Thank you for praying. |
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
Hope all goes well.
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
What René said
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Former Member
Cruncher Joined: May 22, 2018 Post Count: 0 Status: Offline |
What the Baron said! for Maggie
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